So today was exhausting. Enoch had an occupational therapy appointment and a GI appointment. Pip had a hair cut – still a very important thing. I had an appointment with my trusty friend Diet Coke and that got me through the appointments and rewarded me for the hours setting up future appointments and making insurance … More Our Day
Enoch has officially made it to 6 months! Yay! He only had a 50% chance and he did it! We had his check up yesterday and he is doing pretty well. He has dropped from the 20th percentile down to the 5th, but after talking to his pediatrician we aren’t going to worry about it unless he drops … More Dinosaurs are a big deal at our house
Sam is applying for Assistant Professor jobs next year and he’s added teaching an evening class at one of the local colleges to his work load. It was pretty overwhelming and the beginning of the year was not a banner time for any of us, but I’ve started practicing mindfulness and it has made a huge difference … More Mindfulness
So Enoch’s birth was pretty low key to everyone’s surprise. He didn’t need any breathing or feeding interventions. I had to have more interventions then he did, but by the end of the day we were both doing fine. We were doing so well that when we got the results from Enoch’s MRI the … More Here he is!
I’ve had a hard time writing this post for some reason. I think this week has been a harsh reminder that Enoch’s situation is much more serious then I want it to be and that is hard. The hardest things haven’t been the things that have actually happened, but realizing that the life Sam and … More We spoke too soon
People have started asking me again “how is everything going”… which I think its time for another update. In a nutshell, things are still fine. No new news. Cherie is going in to two doctor’s appointments each week. The first is with our Maternal Fetal Medicine specialist for an ultrasound. There they do a bio-physical … More Pregnancy Updates
So our care conference was great. We met with our OB, a Neonatologist, our Maternal Fetal Medicine specialist, a nurse from labor and delivery, and a nurse from the NICU. We talked a little bit about how labor with Pip went, and what we know about Enoch’s condition. Here is how everyone fits in together … More Care Conference Round Up
We had another ultrasound today. Enoch was in a great position so it only took 15 minutes to get the images they needed. We didn’t see anything new, but Enoch looks great! I’ve included a picture of his brain, but it isn’t very clear. I circled the biggest problem he has, but there are other issues … More It’s a good day!
There has been a lot going on around here. We took our family trip to the Walt Disney World Resort, we’re moving this weekend to another apartment in the neighborhood, we’ve been visited by and paid visits to family, and I’ve been busy with school/work on and off all summer. And of course we have our … More July Updates
So we just had an ultrasound today. Enoch looks so cute! I love seeing him move around and he looks so healthy it is hard to believe there is anything wrong. He has a great heart with an awesome heart rate, we watched him swallow, and he moves like a pro. The MFM (maternal fetal … More We learned something!
enoch 